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Wednesday, June 27, 2007
So Megan woke from nap and wore her glasses to watch Caillou and it dawned on me that this is the 1st time she is probably really seeing Caillou or me for that matter. Her glasses are so thick and looking through them is so strange. I just cannot believe she was that blind. The poor thing. She keeps asking if she can take them off but she is doing great and wearing them with out much fuss.
Here are some terrible pics, my camera is acting up. I will try to get better one's when dh gets home.
p.s. They gave Megan a clear glass case and it has a blue paw print that say's "Pup's"...Livi saw it laying on the floor and goes "mommy mommy a clue a clue" It was so darn funny, she is one smart little cookie.
Here are some terrible pics, my camera is acting up. I will try to get better one's when dh gets home.
p.s. They gave Megan a clear glass case and it has a blue paw print that say's "Pup's"...Livi saw it laying on the floor and goes "mommy mommy a clue a clue" It was so darn funny, she is one smart little cookie.
So after many days of waiting and the glasses place running out of the frames we wanted...we finally got the glasses...although not in the color we wanted. They are red, so I guess we will have to nick-name Megan "Sally Jessie" ha ha.
She is napping right now but as soon as she wakes I will snap some pics and post!.
She is napping right now but as soon as she wakes I will snap some pics and post!.
Thursday, June 21, 2007
So we were watching Noggin this morning when I saw a funny song "I hog the ground"
The guy sounded so familiar when I realized it was Steve from Blue's Clue's...I just love him and it was so good to see him doing so well. He was preforming with the band The Flaming Lips and he has an album being released soon. You can find him on myspace.
Click on the link and there are music video's...scroll to the right and scroll over the picture and will see "Steve Burns and Steven Drozd: I hog the ground"
Noggin
The guy sounded so familiar when I realized it was Steve from Blue's Clue's...I just love him and it was so good to see him doing so well. He was preforming with the band The Flaming Lips and he has an album being released soon. You can find him on myspace.
Click on the link and there are music video's...scroll to the right and scroll over the picture and will see "Steve Burns and Steven Drozd: I hog the ground"
Noggin
Hey guys, I haven't spoken much of the news article. I appreciate all the positive feedback and any and all feedback left on the phillyburbs sight...which means more positive publicity for our kids with Down Syndrome.
However, I wanted to explain that the article is not accurate in many effects.
Here is my list I emailed to the reporter:
1. I did not say...."the doctor's made it so negative" about Megan. My doctor's in fact were very positive. I will be sad for my doctor's to read this because they in fact were very supportive of Megan. What I believe you were referring to was when I told you of how other mother's experiences were.
2. I specifically asked you to refer to children with down syndrome as "children" first....and it say's..."...63 mothers who collaborated on a book about raising a down syndrome child" IT IS CHILD WITH DOWN SYNDROME
3. Kathern Soper has never worked for Woodbine House. She operates her own publishing company "Sequllah" and it was published through her company 1st before Woodbine House read our online version and did a reprint which you can buy in Barnes and Noble.
4. There was no mention of being able to buy the book at B&N, which was suppose to be what the article was about, you cannot buy it at OBGYN offices which is what the article makes it seem like. The contributors have been donating copies to OBGYN offices and all proceeds of the book go to purchasing even more copies to donate. One contributor donated books to the ACOG convention in May.
5. There was no mention of my daughter Olivia which was the reason for becoming a SAHM...(not a big deal but the article makes it seem like I left my job to care for my 10 year old)
So I just wanted to clear the air as I was embarrassed to share this with the other contributors of the book as I mentioned through email my disdain for the reporter as he was preparing the article...I did not go with my gut and continued.
So my apologies go out to my doctor's and Kathy. I apologize for the mistakes. Although it did no harm for our cause, it wasn't what I was expecting.
Here is the link in case you missed it
Courier Times Article
However, I wanted to explain that the article is not accurate in many effects.
Here is my list I emailed to the reporter:
1. I did not say...."the doctor's made it so negative" about Megan. My doctor's in fact were very positive. I will be sad for my doctor's to read this because they in fact were very supportive of Megan. What I believe you were referring to was when I told you of how other mother's experiences were.
2. I specifically asked you to refer to children with down syndrome as "children" first....and it say's..."...63 mothers who collaborated on a book about raising a down syndrome child" IT IS CHILD WITH DOWN SYNDROME
3. Kathern Soper has never worked for Woodbine House. She operates her own publishing company "Sequllah" and it was published through her company 1st before Woodbine House read our online version and did a reprint which you can buy in Barnes and Noble.
4. There was no mention of being able to buy the book at B&N, which was suppose to be what the article was about, you cannot buy it at OBGYN offices which is what the article makes it seem like. The contributors have been donating copies to OBGYN offices and all proceeds of the book go to purchasing even more copies to donate. One contributor donated books to the ACOG convention in May.
5. There was no mention of my daughter Olivia which was the reason for becoming a SAHM...(not a big deal but the article makes it seem like I left my job to care for my 10 year old)
So I just wanted to clear the air as I was embarrassed to share this with the other contributors of the book as I mentioned through email my disdain for the reporter as he was preparing the article...I did not go with my gut and continued.
So my apologies go out to my doctor's and Kathy. I apologize for the mistakes. Although it did no harm for our cause, it wasn't what I was expecting.
Here is the link in case you missed it
Courier Times Article
I of course will post a picture right away of my beautiful girl in her new studios glasses. She was very cute at the eye glass place runninng all over pointing at all the designer frames. She had a fan club who knew her name as they were leaving..."Bye Megan, enjoy your new glasses"
Our road to getting glasses was not pretty. We originally started at a pediatric ophthalmologist in Newtown, PA...name listed as to not make the same mistake as me and go to him with your children (Dr. Oppenheimer) I brought Megan in the 1st time for just a check-up where he gave her a clean bill of health, that was when she was just under 2. Over the next year she began crossing her eyes inward a ton. We went for her 3 year check up in Nov. 06 when our ped told us to go back to the eye doctor because he didn't like the way her eyes were crossing so frequently. So I called next day and got her right in. She had a referral which stated she needed to be checked for eye crossing and depth perception issues. We were there for about an hour for the doctor to tell me I was an exaggerating mother because he could not recreate the problem with all his high-tech techniques. He has several patients with down syndrome and all the parents are the same, they automatically think there is a major issue when in all honesty it is there IQ. You can read that statement again if you want, but that is what he told me. I am so mad that I cried and left there w/o telling him what I thought of him. He knew I was angry an offered a name of another opthamologist for a 2nd opinion. I just walked out and went 7 whole months before following up.
Megan has gotten much worse with the eye crossing so I knew we needed to get an appointment. So we went and saw the most awesome eye doctor. She was INCREDIBLE and never assumed I was exaggerating as she actually had techniques and brains to see it for herself. Megan has a back head tilt...which I never thought had to do with her vision...but in fact she has an "A pattern Estropia" which means she can only see when she tilts her head back and that is why she always sits directly under the TV and puts her face up to all her books. When her head is straight her eyes cross and when she looks down she is completely farsighted. So now we do glasses for 6 weeks to see if there is a difference in the eye crossing. If there is no change we might be having eye surgery.
Our road to getting glasses was not pretty. We originally started at a pediatric ophthalmologist in Newtown, PA...name listed as to not make the same mistake as me and go to him with your children (Dr. Oppenheimer) I brought Megan in the 1st time for just a check-up where he gave her a clean bill of health, that was when she was just under 2. Over the next year she began crossing her eyes inward a ton. We went for her 3 year check up in Nov. 06 when our ped told us to go back to the eye doctor because he didn't like the way her eyes were crossing so frequently. So I called next day and got her right in. She had a referral which stated she needed to be checked for eye crossing and depth perception issues. We were there for about an hour for the doctor to tell me I was an exaggerating mother because he could not recreate the problem with all his high-tech techniques. He has several patients with down syndrome and all the parents are the same, they automatically think there is a major issue when in all honesty it is there IQ. You can read that statement again if you want, but that is what he told me. I am so mad that I cried and left there w/o telling him what I thought of him. He knew I was angry an offered a name of another opthamologist for a 2nd opinion. I just walked out and went 7 whole months before following up.
Megan has gotten much worse with the eye crossing so I knew we needed to get an appointment. So we went and saw the most awesome eye doctor. She was INCREDIBLE and never assumed I was exaggerating as she actually had techniques and brains to see it for herself. Megan has a back head tilt...which I never thought had to do with her vision...but in fact she has an "A pattern Estropia" which means she can only see when she tilts her head back and that is why she always sits directly under the TV and puts her face up to all her books. When her head is straight her eyes cross and when she looks down she is completely farsighted. So now we do glasses for 6 weeks to see if there is a difference in the eye crossing. If there is no change we might be having eye surgery.
Help me decide what to do doctor. I had prenatal testing and we determined the child I am carrying has an extraordinary IQ and is an amazing athlete.
To help my child flourish in his brilliant world I have come to notice that I cannot afford this child. Here is my break down:
0-12 mths: Psychological evaluations and tests to keep my child on track $1500 a mth
12mth-36 mths: Classes at the local college with other brilliant children $3600 a month
3years to 5 years: Private pre-school for the socially abled child at Chesterbrook Academy $25,000 a year + private piano lessons to nurture the artist side $1200 a month
5 years to 18 years old: Private Boarding School at the local George School $37,500 a year for 14 years
5 years to 18 years: Private golf lessons at local Country club $17,000 a year, cause we need to become members.
Travel abroad over the 18 years for the cultural experience- $14,00 a year
So that is approx $950,000 in 18 years of life.
Not to mention the 8 years of Harvard....@ $50,000 a year
Doctor, what should I do?
Doctor says, Well of course you should have the baby, what does money have to do with love?
-------------
This of course is just a satirical version of the new ACOG release that Diane posted on downsyn. I have not been able to get it off my mind so I needed to write this down. As I cannot for the life of me figure out what money has to do with love?
Here is the link to the article:
ACOG article
sickening, just sickening
To help my child flourish in his brilliant world I have come to notice that I cannot afford this child. Here is my break down:
0-12 mths: Psychological evaluations and tests to keep my child on track $1500 a mth
12mth-36 mths: Classes at the local college with other brilliant children $3600 a month
3years to 5 years: Private pre-school for the socially abled child at Chesterbrook Academy $25,000 a year + private piano lessons to nurture the artist side $1200 a month
5 years to 18 years old: Private Boarding School at the local George School $37,500 a year for 14 years
5 years to 18 years: Private golf lessons at local Country club $17,000 a year, cause we need to become members.
Travel abroad over the 18 years for the cultural experience- $14,00 a year
So that is approx $950,000 in 18 years of life.
Not to mention the 8 years of Harvard....@ $50,000 a year
Doctor, what should I do?
Doctor says, Well of course you should have the baby, what does money have to do with love?
-------------
This of course is just a satirical version of the new ACOG release that Diane posted on downsyn. I have not been able to get it off my mind so I needed to write this down. As I cannot for the life of me figure out what money has to do with love?
Here is the link to the article:
ACOG article
sickening, just sickening
Tuesday, June 12, 2007
Jennifer from Pinwheels tagged me, now I’m it. I need to answer the following questions with just one word:
1. Where is your cell phone? charging
2. Relationship? married
3. Your hair? red
4. Work? kids
5. Your sister? friend
6. Your favorite thing? kids
7. Your dream last night? falling
8. Your favorite drink? coffee
9. Your dream car? denali
10. The room you’re in? den
11. Your shoes? none
12. Your fears? death
13. What do you want to be in 10 years? happy
14. Who did you hang out with this weekend? family
15. What are you not good at? lying
16. Muffin? blueberry
17. One of your wish list items? house
18. Where you grew up? PA
19. Last thing you did? talk
20. What are you wearing? dress
21. What aren’t you wearing? shoes
22. Your pet? Emily
23. Your computer? Dell
24. Your life? wonderful
25. Your mood? calm
26. Missing? toys
27. What are you thinking about right now? questions
28. Your car? minivan
29. Your kitchen? blue
30. Your summer? filled
31. Your favorite color? blue
32. Last time you laughed? today
33. Last time you cried? today
34. School? Pennsbury
35. Love? all
To tag, or not to tag, that is the question…
I tag Kwistenna's Kwaziness and Life with Bubba and Chicky and The Flege Farm
1. Where is your cell phone? charging
2. Relationship? married
3. Your hair? red
4. Work? kids
5. Your sister? friend
6. Your favorite thing? kids
7. Your dream last night? falling
8. Your favorite drink? coffee
9. Your dream car? denali
10. The room you’re in? den
11. Your shoes? none
12. Your fears? death
13. What do you want to be in 10 years? happy
14. Who did you hang out with this weekend? family
15. What are you not good at? lying
16. Muffin? blueberry
17. One of your wish list items? house
18. Where you grew up? PA
19. Last thing you did? talk
20. What are you wearing? dress
21. What aren’t you wearing? shoes
22. Your pet? Emily
23. Your computer? Dell
24. Your life? wonderful
25. Your mood? calm
26. Missing? toys
27. What are you thinking about right now? questions
28. Your car? minivan
29. Your kitchen? blue
30. Your summer? filled
31. Your favorite color? blue
32. Last time you laughed? today
33. Last time you cried? today
34. School? Pennsbury
35. Love? all
To tag, or not to tag, that is the question…
I tag Kwistenna's Kwaziness and Life with Bubba and Chicky and The Flege Farm
School's out for summer!!!!
I keep signing that song in my head as today is the last day of school...yippee!
I think I am as excited as Joey.
We got his yearbook and I flipped through each and every page looking for him to appear in at least 1 picture...well, he was at least in his class picture.
I was on the yearbook committee last year and was very good about getting random pics of ALL the kids. Well this year I never heard back to be on the committee and well, this year there are just the same kids in each pic....and all there mom's are on the committee or a homeroom mom....go figure. I almost want to ask for my money back....it made me ill to page through it.
Are your schools as political as mine? You don't make travel baseball unless your dad is a coach...you don't get invited to parties unless you "fit" in. You get left out of the yearbook unless your mom is a PTO mom...ugh!
I am so taking over our school once my girls are in elementary and I AM GOING TO INCLUDE EVERYONE! I am not going to make anyone feel left out or shunned...it is the worst feeling in the world.
School politcs are over for 9 weeks....yippee!
I keep signing that song in my head as today is the last day of school...yippee!
I think I am as excited as Joey.
We got his yearbook and I flipped through each and every page looking for him to appear in at least 1 picture...well, he was at least in his class picture.
I was on the yearbook committee last year and was very good about getting random pics of ALL the kids. Well this year I never heard back to be on the committee and well, this year there are just the same kids in each pic....and all there mom's are on the committee or a homeroom mom....go figure. I almost want to ask for my money back....it made me ill to page through it.
Are your schools as political as mine? You don't make travel baseball unless your dad is a coach...you don't get invited to parties unless you "fit" in. You get left out of the yearbook unless your mom is a PTO mom...ugh!
I am so taking over our school once my girls are in elementary and I AM GOING TO INCLUDE EVERYONE! I am not going to make anyone feel left out or shunned...it is the worst feeling in the world.
School politcs are over for 9 weeks....yippee!
Tuesday, June 5, 2007
Maybe this blogging wasn't such a good idea (lol) because now I am all over the place and found this "Blog for a year"...how cool would it be to write everyday and get paid for it...all you have to do is go to this link and vote....and you can vote everyday. The pay check is $80,000 not too bad!
Click on the link and vote. Thanks peeps!
Click on the link and vote. Thanks peeps!
I know my girl is smart. She does not talk as much as other 3 year olds, but she does understand everything you say....here is an example.
Working with Olivia following directions:
Livi throws her sippy cup on the floor.
Mom: Livi, pick it up and put it on the kitchen table
Livi: No
Mom: Livi, please pick it up and put it on the table
Livi picks it up
Mom: Good girl...(PRAISE PRAISE PRAISE)
Livi smiles and runs into the kitchen, opens our cabinet and chucks the sippy in the trash can
Mom:
Megan marches over to the trash, pulls out the cup and slams it on the table saying "LIVI TABLE"
It was sooooo funny and too cute!
She can teach Livi a thing or too.
OK, another that happened yesterday...not a brag since it isn't the nicest thing to say but her new favorite movie is Madagascar (Joey will watch it in the car w/o complaining and the girls like it so everyone is happy) Well, Megan LAUGHS through the whole thing, just loves the movie.
We pull in the drive way and I turned off my car before this line in the movie came on and Megan almost repeated it verbatim...we even turned the car back on to see...YUP, she said...
"excuse me, your biting my butt"
Me and Joey were in hysterics!
Working with Olivia following directions:
Livi throws her sippy cup on the floor.
Mom: Livi, pick it up and put it on the kitchen table
Livi: No
Mom: Livi, please pick it up and put it on the table
Livi picks it up
Mom: Good girl...(PRAISE PRAISE PRAISE)
Livi smiles and runs into the kitchen, opens our cabinet and chucks the sippy in the trash can
Mom:
Megan marches over to the trash, pulls out the cup and slams it on the table saying "LIVI TABLE"
It was sooooo funny and too cute!
She can teach Livi a thing or too.
OK, another that happened yesterday...not a brag since it isn't the nicest thing to say but her new favorite movie is Madagascar (Joey will watch it in the car w/o complaining and the girls like it so everyone is happy) Well, Megan LAUGHS through the whole thing, just loves the movie.
We pull in the drive way and I turned off my car before this line in the movie came on and Megan almost repeated it verbatim...we even turned the car back on to see...YUP, she said...
"excuse me, your biting my butt"
Me and Joey were in hysterics!
Joey pitched the 1st 3 innings and did AWESOME. The 1st and 2nd innings were 3 up 3 down...he was on fire. The last inning they scored 1 run, but his team ended up winning 9 to 2. So we play again tomorrow. If we win tomorrow we play in the championship game on Saturday.
It would be his 2nd year making the Championship game.
Last year his team was teetering on last place. There were 8 teams and the top 7 made the playoffs. Well we somehow crawled by to make the playoffs. Somehow, someway our boys made it to the Championship game, it was surreal, bad news bear like. Well in the hot June sun we sat for 3 long hours while we went into the 10th inning (in little league they play 6 innings) but we needed a winner for this game and the best team in the league was having a hard time beating our boys.
It was heart wrenching, the boys lost when 1 boy had walked and the next hit him home. It was so sad to see this group of 9 year old boys crying, but it was so exciting at the same time.
We love baseball in our house. I will share some pics tomorrow as bad mom walked out of the house w/o the camera.
It would be his 2nd year making the Championship game.
Last year his team was teetering on last place. There were 8 teams and the top 7 made the playoffs. Well we somehow crawled by to make the playoffs. Somehow, someway our boys made it to the Championship game, it was surreal, bad news bear like. Well in the hot June sun we sat for 3 long hours while we went into the 10th inning (in little league they play 6 innings) but we needed a winner for this game and the best team in the league was having a hard time beating our boys.
It was heart wrenching, the boys lost when 1 boy had walked and the next hit him home. It was so sad to see this group of 9 year old boys crying, but it was so exciting at the same time.
We love baseball in our house. I will share some pics tomorrow as bad mom walked out of the house w/o the camera.
I am running out the door to Joey's playoff game where he is starting pitcher.
His team finished first in the league...much different from last year.
I will tell the story when I get in...but wanted you all to think positive thoughts that he does well, pitching is a BIG stress.
Thanks!
Jamie if you read this, wish we could make it :(
His team finished first in the league...much different from last year.
I will tell the story when I get in...but wanted you all to think positive thoughts that he does well, pitching is a BIG stress.
Thanks!
Jamie if you read this, wish we could make it :(
Sunday, June 3, 2007
So I am on my 2nd day of working out and eating right. Can I quit yet?
My body is in so much pain...supposedly once I am used to it, it will make me feel better.
I just wanted more energy and not feel tired all the time but man ol' man, when I come in from the gym, all I want to do is snooze on the couch.
I am hoping to lose about 70 lbs all together. Then I will be healthy and fit and can maybe try playing basketball again. I miss that!
So I am asking my new blogging friends. Please share any recipes for healthy foods, good routines, any pointers, good websites to help track progress.
I spent $194 tonight at the grocery store buying "healthy"...man that doesn't get you much....it is expensive to eat well.
My body is in so much pain...supposedly once I am used to it, it will make me feel better.
I just wanted more energy and not feel tired all the time but man ol' man, when I come in from the gym, all I want to do is snooze on the couch.
I am hoping to lose about 70 lbs all together. Then I will be healthy and fit and can maybe try playing basketball again. I miss that!
So I am asking my new blogging friends. Please share any recipes for healthy foods, good routines, any pointers, good websites to help track progress.
I spent $194 tonight at the grocery store buying "healthy"...man that doesn't get you much....it is expensive to eat well.
Friday, June 1, 2007
Updated to You Tube:
Check out the link to watch me, Megan and the other contributors of Gifts on our television interview. I am so proud of all of us, we are really getting our name out there and helping so many new parents.
Well gotta go answer another email and phone call, I seem to be miss popular tonight...LOL
Check out the link to watch me, Megan and the other contributors of Gifts on our television interview. I am so proud of all of us, we are really getting our name out there and helping so many new parents.
Well gotta go answer another email and phone call, I seem to be miss popular tonight...LOL
Have you all seen or read about this case of TB. It is so scary but for me it is all a little bizzare and unreal.
Did you read that this man married the daughter of a CDC microbiologist whose specialty is TB???? How did this guy get TB? It is all a little strange to me.
But my feeling is that yet again doctors haven't a clue what they are doing...and also had a hand in this man "possibly" infecting a dozen other passengers on that airplane.
Has anyone heard any other news on this? I am so intrigued by this story.
Did you read that this man married the daughter of a CDC microbiologist whose specialty is TB???? How did this guy get TB? It is all a little strange to me.
But my feeling is that yet again doctors haven't a clue what they are doing...and also had a hand in this man "possibly" infecting a dozen other passengers on that airplane.
Has anyone heard any other news on this? I am so intrigued by this story.
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