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Friday, July 6, 2007
It is my baby's 2nd birthday. She is growing up way too fast...I miss the baby cuddling months but also love the little toddler she is becoming. She currently is on 1 speed....FAST...she does not walk anywhere, she always runs. It makes me laugh out loud to see her in the store or outside running everywhere to see what she can get her hands on. She truly is a lover of life. She loves me, her sister, her brother, her toys, her bed, EVERYTHING (Joey told me to put cookies)...she is shy and is a leg grabber when someone new is around...she still sucks on her binky whenever she can...she loves to color....she is miss independent and will not let me help her do anything, she wants to do it on her own....she does not yet learn from her mistakes, she will jump off a high ledge, cry and do it over again...she plays on her swing set whenever she gets a chance...she is a kid watcher, she loves watching all the things big kids do and then wants to get a reaction from them (i.e. turning off there video games, taking their bucket, etc)...I could go on and on about her and how she is...it is so hard to explain the love I have for each of my children, they all mean the world to me and I would do anything for them.
HAPPY 2ND BIRTHDAY OLIVIA!!!!
Here are her pictures we had done today at kiddie kandids
HAPPY 2ND BIRTHDAY OLIVIA!!!!
Here are her pictures we had done today at kiddie kandids
Wednesday, July 4, 2007
So I went to the movies today with my son Joey and dh Joe. My parents watched the girls as they cooked ribs and steak on the grill for the holiday.
I must say "WOW" about the movie. It was very adrenaline rush, edge of your seat, adventure, thriller, violent type movie, but FUNNY. It was also very silly and lost a lot of umph by the end. It is one you must see in the theater though, I am sure it won't be as good on DVD.
However, there is a part of the movie which made me uncomfortable with my 10 year old son sitting next to me (It is rated PG-13). There was a scene where the mother mentions "masturbation" and my son REALLY LOUDLY asked me what that meant...I quickly shhhhushed him and told him I would tell him later when I was secretly hoping he would forget about it....which he did (thank goodness).
So I do think this movie was good 3 out of 4 stars but I would definitely leave the pre-teens at home. Not for the pure of heart.
I must say "WOW" about the movie. It was very adrenaline rush, edge of your seat, adventure, thriller, violent type movie, but FUNNY. It was also very silly and lost a lot of umph by the end. It is one you must see in the theater though, I am sure it won't be as good on DVD.
However, there is a part of the movie which made me uncomfortable with my 10 year old son sitting next to me (It is rated PG-13). There was a scene where the mother mentions "masturbation" and my son REALLY LOUDLY asked me what that meant...I quickly shhhhushed him and told him I would tell him later when I was secretly hoping he would forget about it....which he did (thank goodness).
So I do think this movie was good 3 out of 4 stars but I would definitely leave the pre-teens at home. Not for the pure of heart.
Tuesday, July 3, 2007
sniff sniff. I have to say we were all very sad to see Gigi go.
We sent her on her way to Pittsburgh to be with Maeve.
(If you don't know who Gigi The Traveling Poodle is, please go to her website )
My girls were very attached to Gigi, fighting over who gets to hold her in the car.
"G's" were a difficult sound for Megan to pronounce but not anymore...she has the "G-G's" down pat!
So here is a list of all the stuff Gigi got to do with the Bissol Family:
1. Got to meet and greet my best friends twins Abigail and Alexa
2. Got to watch the River Dogs win the 2007 Carlton Division Championships
3. Went to Six Flags Great Adventure with my whole family for Father's Day
4. Spent a whole week in the classroom with Megan, her friends and teachers
5. Got to go to Sesame Place and watch a Fireworks display
And I think I may be missing somethings, but that list shows you she was here for awhile longer than she was supposed to (sorry Darah).
But everyone I met LOVED GIGI and her traveling to bring Down Syndrome Awareness.
I said to myself, what Gigi represented to us was "Friendship on the 21st Chromosome"
Boy is it strong!!!!!
We love you Powell Family and thank you so much for sharing Gigi with us!
Gigi The Traveling Poodle is a book waiting to be published!
Here are some pics to enjoy!
p.s. We adorned a "Bissol Band Aid" so that Gigi would always remember us!
We sent her on her way to Pittsburgh to be with Maeve.
(If you don't know who Gigi The Traveling Poodle is, please go to her website )
My girls were very attached to Gigi, fighting over who gets to hold her in the car.
"G's" were a difficult sound for Megan to pronounce but not anymore...she has the "G-G's" down pat!
So here is a list of all the stuff Gigi got to do with the Bissol Family:
1. Got to meet and greet my best friends twins Abigail and Alexa
2. Got to watch the River Dogs win the 2007 Carlton Division Championships
3. Went to Six Flags Great Adventure with my whole family for Father's Day
4. Spent a whole week in the classroom with Megan, her friends and teachers
5. Got to go to Sesame Place and watch a Fireworks display
And I think I may be missing somethings, but that list shows you she was here for awhile longer than she was supposed to (sorry Darah).
But everyone I met LOVED GIGI and her traveling to bring Down Syndrome Awareness.
I said to myself, what Gigi represented to us was "Friendship on the 21st Chromosome"
Boy is it strong!!!!!
We love you Powell Family and thank you so much for sharing Gigi with us!
Gigi The Traveling Poodle is a book waiting to be published!
Here are some pics to enjoy!
p.s. We adorned a "Bissol Band Aid" so that Gigi would always remember us!
Wednesday, June 27, 2007
So Megan woke from nap and wore her glasses to watch Caillou and it dawned on me that this is the 1st time she is probably really seeing Caillou or me for that matter. Her glasses are so thick and looking through them is so strange. I just cannot believe she was that blind. The poor thing. She keeps asking if she can take them off but she is doing great and wearing them with out much fuss.
Here are some terrible pics, my camera is acting up. I will try to get better one's when dh gets home.
p.s. They gave Megan a clear glass case and it has a blue paw print that say's "Pup's"...Livi saw it laying on the floor and goes "mommy mommy a clue a clue" It was so darn funny, she is one smart little cookie.
Here are some terrible pics, my camera is acting up. I will try to get better one's when dh gets home.
p.s. They gave Megan a clear glass case and it has a blue paw print that say's "Pup's"...Livi saw it laying on the floor and goes "mommy mommy a clue a clue" It was so darn funny, she is one smart little cookie.
So after many days of waiting and the glasses place running out of the frames we wanted...we finally got the glasses...although not in the color we wanted. They are red, so I guess we will have to nick-name Megan "Sally Jessie" ha ha.
She is napping right now but as soon as she wakes I will snap some pics and post!.
She is napping right now but as soon as she wakes I will snap some pics and post!.
Thursday, June 21, 2007
So we were watching Noggin this morning when I saw a funny song "I hog the ground"
The guy sounded so familiar when I realized it was Steve from Blue's Clue's...I just love him and it was so good to see him doing so well. He was preforming with the band The Flaming Lips and he has an album being released soon. You can find him on myspace.
Click on the link and there are music video's...scroll to the right and scroll over the picture and will see "Steve Burns and Steven Drozd: I hog the ground"
Noggin
The guy sounded so familiar when I realized it was Steve from Blue's Clue's...I just love him and it was so good to see him doing so well. He was preforming with the band The Flaming Lips and he has an album being released soon. You can find him on myspace.
Click on the link and there are music video's...scroll to the right and scroll over the picture and will see "Steve Burns and Steven Drozd: I hog the ground"
Noggin
Hey guys, I haven't spoken much of the news article. I appreciate all the positive feedback and any and all feedback left on the phillyburbs sight...which means more positive publicity for our kids with Down Syndrome.
However, I wanted to explain that the article is not accurate in many effects.
Here is my list I emailed to the reporter:
1. I did not say...."the doctor's made it so negative" about Megan. My doctor's in fact were very positive. I will be sad for my doctor's to read this because they in fact were very supportive of Megan. What I believe you were referring to was when I told you of how other mother's experiences were.
2. I specifically asked you to refer to children with down syndrome as "children" first....and it say's..."...63 mothers who collaborated on a book about raising a down syndrome child" IT IS CHILD WITH DOWN SYNDROME
3. Kathern Soper has never worked for Woodbine House. She operates her own publishing company "Sequllah" and it was published through her company 1st before Woodbine House read our online version and did a reprint which you can buy in Barnes and Noble.
4. There was no mention of being able to buy the book at B&N, which was suppose to be what the article was about, you cannot buy it at OBGYN offices which is what the article makes it seem like. The contributors have been donating copies to OBGYN offices and all proceeds of the book go to purchasing even more copies to donate. One contributor donated books to the ACOG convention in May.
5. There was no mention of my daughter Olivia which was the reason for becoming a SAHM...(not a big deal but the article makes it seem like I left my job to care for my 10 year old)
So I just wanted to clear the air as I was embarrassed to share this with the other contributors of the book as I mentioned through email my disdain for the reporter as he was preparing the article...I did not go with my gut and continued.
So my apologies go out to my doctor's and Kathy. I apologize for the mistakes. Although it did no harm for our cause, it wasn't what I was expecting.
Here is the link in case you missed it
Courier Times Article
However, I wanted to explain that the article is not accurate in many effects.
Here is my list I emailed to the reporter:
1. I did not say...."the doctor's made it so negative" about Megan. My doctor's in fact were very positive. I will be sad for my doctor's to read this because they in fact were very supportive of Megan. What I believe you were referring to was when I told you of how other mother's experiences were.
2. I specifically asked you to refer to children with down syndrome as "children" first....and it say's..."...63 mothers who collaborated on a book about raising a down syndrome child" IT IS CHILD WITH DOWN SYNDROME
3. Kathern Soper has never worked for Woodbine House. She operates her own publishing company "Sequllah" and it was published through her company 1st before Woodbine House read our online version and did a reprint which you can buy in Barnes and Noble.
4. There was no mention of being able to buy the book at B&N, which was suppose to be what the article was about, you cannot buy it at OBGYN offices which is what the article makes it seem like. The contributors have been donating copies to OBGYN offices and all proceeds of the book go to purchasing even more copies to donate. One contributor donated books to the ACOG convention in May.
5. There was no mention of my daughter Olivia which was the reason for becoming a SAHM...(not a big deal but the article makes it seem like I left my job to care for my 10 year old)
So I just wanted to clear the air as I was embarrassed to share this with the other contributors of the book as I mentioned through email my disdain for the reporter as he was preparing the article...I did not go with my gut and continued.
So my apologies go out to my doctor's and Kathy. I apologize for the mistakes. Although it did no harm for our cause, it wasn't what I was expecting.
Here is the link in case you missed it
Courier Times Article
I of course will post a picture right away of my beautiful girl in her new studios glasses. She was very cute at the eye glass place runninng all over pointing at all the designer frames. She had a fan club who knew her name as they were leaving..."Bye Megan, enjoy your new glasses"
Our road to getting glasses was not pretty. We originally started at a pediatric ophthalmologist in Newtown, PA...name listed as to not make the same mistake as me and go to him with your children (Dr. Oppenheimer) I brought Megan in the 1st time for just a check-up where he gave her a clean bill of health, that was when she was just under 2. Over the next year she began crossing her eyes inward a ton. We went for her 3 year check up in Nov. 06 when our ped told us to go back to the eye doctor because he didn't like the way her eyes were crossing so frequently. So I called next day and got her right in. She had a referral which stated she needed to be checked for eye crossing and depth perception issues. We were there for about an hour for the doctor to tell me I was an exaggerating mother because he could not recreate the problem with all his high-tech techniques. He has several patients with down syndrome and all the parents are the same, they automatically think there is a major issue when in all honesty it is there IQ. You can read that statement again if you want, but that is what he told me. I am so mad that I cried and left there w/o telling him what I thought of him. He knew I was angry an offered a name of another opthamologist for a 2nd opinion. I just walked out and went 7 whole months before following up.
Megan has gotten much worse with the eye crossing so I knew we needed to get an appointment. So we went and saw the most awesome eye doctor. She was INCREDIBLE and never assumed I was exaggerating as she actually had techniques and brains to see it for herself. Megan has a back head tilt...which I never thought had to do with her vision...but in fact she has an "A pattern Estropia" which means she can only see when she tilts her head back and that is why she always sits directly under the TV and puts her face up to all her books. When her head is straight her eyes cross and when she looks down she is completely farsighted. So now we do glasses for 6 weeks to see if there is a difference in the eye crossing. If there is no change we might be having eye surgery.
Our road to getting glasses was not pretty. We originally started at a pediatric ophthalmologist in Newtown, PA...name listed as to not make the same mistake as me and go to him with your children (Dr. Oppenheimer) I brought Megan in the 1st time for just a check-up where he gave her a clean bill of health, that was when she was just under 2. Over the next year she began crossing her eyes inward a ton. We went for her 3 year check up in Nov. 06 when our ped told us to go back to the eye doctor because he didn't like the way her eyes were crossing so frequently. So I called next day and got her right in. She had a referral which stated she needed to be checked for eye crossing and depth perception issues. We were there for about an hour for the doctor to tell me I was an exaggerating mother because he could not recreate the problem with all his high-tech techniques. He has several patients with down syndrome and all the parents are the same, they automatically think there is a major issue when in all honesty it is there IQ. You can read that statement again if you want, but that is what he told me. I am so mad that I cried and left there w/o telling him what I thought of him. He knew I was angry an offered a name of another opthamologist for a 2nd opinion. I just walked out and went 7 whole months before following up.
Megan has gotten much worse with the eye crossing so I knew we needed to get an appointment. So we went and saw the most awesome eye doctor. She was INCREDIBLE and never assumed I was exaggerating as she actually had techniques and brains to see it for herself. Megan has a back head tilt...which I never thought had to do with her vision...but in fact she has an "A pattern Estropia" which means she can only see when she tilts her head back and that is why she always sits directly under the TV and puts her face up to all her books. When her head is straight her eyes cross and when she looks down she is completely farsighted. So now we do glasses for 6 weeks to see if there is a difference in the eye crossing. If there is no change we might be having eye surgery.
Help me decide what to do doctor. I had prenatal testing and we determined the child I am carrying has an extraordinary IQ and is an amazing athlete.
To help my child flourish in his brilliant world I have come to notice that I cannot afford this child. Here is my break down:
0-12 mths: Psychological evaluations and tests to keep my child on track $1500 a mth
12mth-36 mths: Classes at the local college with other brilliant children $3600 a month
3years to 5 years: Private pre-school for the socially abled child at Chesterbrook Academy $25,000 a year + private piano lessons to nurture the artist side $1200 a month
5 years to 18 years old: Private Boarding School at the local George School $37,500 a year for 14 years
5 years to 18 years: Private golf lessons at local Country club $17,000 a year, cause we need to become members.
Travel abroad over the 18 years for the cultural experience- $14,00 a year
So that is approx $950,000 in 18 years of life.
Not to mention the 8 years of Harvard....@ $50,000 a year
Doctor, what should I do?
Doctor says, Well of course you should have the baby, what does money have to do with love?
-------------
This of course is just a satirical version of the new ACOG release that Diane posted on downsyn. I have not been able to get it off my mind so I needed to write this down. As I cannot for the life of me figure out what money has to do with love?
Here is the link to the article:
ACOG article
sickening, just sickening
To help my child flourish in his brilliant world I have come to notice that I cannot afford this child. Here is my break down:
0-12 mths: Psychological evaluations and tests to keep my child on track $1500 a mth
12mth-36 mths: Classes at the local college with other brilliant children $3600 a month
3years to 5 years: Private pre-school for the socially abled child at Chesterbrook Academy $25,000 a year + private piano lessons to nurture the artist side $1200 a month
5 years to 18 years old: Private Boarding School at the local George School $37,500 a year for 14 years
5 years to 18 years: Private golf lessons at local Country club $17,000 a year, cause we need to become members.
Travel abroad over the 18 years for the cultural experience- $14,00 a year
So that is approx $950,000 in 18 years of life.
Not to mention the 8 years of Harvard....@ $50,000 a year
Doctor, what should I do?
Doctor says, Well of course you should have the baby, what does money have to do with love?
-------------
This of course is just a satirical version of the new ACOG release that Diane posted on downsyn. I have not been able to get it off my mind so I needed to write this down. As I cannot for the life of me figure out what money has to do with love?
Here is the link to the article:
ACOG article
sickening, just sickening
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