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Monday, December 17, 2007
This morning I got a call from our Ped w/ Megan's blood work results.
Seems her hemoglobin is high and she is producing too many red blood cells. The ped then said that we need to go see a Cardiologist because he thinks she may have a murmur although he has never heard one....HUH? This ever happen to anyone else? What does this all mean. He said her heart is compensating for something and that is why she is producing so many red blood cells. Any info you could give me would be great.

Also, her Celiac test came back elevated for the antibody so now we have to go to a GI doc. Anyone with experience in this area please let me know.

Megan is very healthy. She has never had heart surgery and no problems were ever indicated to us until today. She also has given me no indication of a Celiac problem. Although her bowels are not regular but was told this is common in DS.

The doc is calling me back before Thursday to let me know what the other doctors say....he said he was going to call them and see what they thought and try to get us in for an emergency appointment.

5 comments:

Meredith said...

Sorry I don't have any advice on either, but it sounds like quite the whammy of results! I hope everything checks out just fine. Weird that they'd suspect a heart issue without hearing anything...

Christina said...

that heart thing is weird. But never hurts to follow up with a specialist...As for the Celiac, not sure if you remember, but I had Kallie tested through blood work and she came back high, like she had it but then when we did the endoscopy she tested negative. I am praying Megan doens't have Celiac and that you can figure out that RBC thing quick.

~Melissa~ said...

I don't have any experience, but I wanted to let you know that I'm thinking of you and I hope everything gets sorted out!

rylie's mom said...

Sorry to hear this- I hope you get your answers from the doctors quickly and I pray everything is OK for Megan.

Mommy to those Special Ks said...

Don't stress yet, Kennedy's at risk too and her biopsy showed her on the border for celiac's. Hopefully Megan's biopsy will come back clear. With no symptoms, I would feel pretty confident! :)