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Thursday, October 4, 2007
On the 4th day of Down Syndrome Awareness Month I wanted to share this video. It is a video of a boy named Matt. He is from England and I was very fortunate to be able to meet him and his family this past May after knowing them for 3 years through our internet support group downsyn.com. Matt was such an inspiration to me. After Megan was born he was the first face I looked at. I would call Joe to the computer to show him this little boy. I saw pictures of him before and after heart surgery. He was so strong bearing weight on his legs at 5 months old. He had the cutest smile. He was the first thing to show me "Down Syndrome was going to be ok." I am sure we all have things that touch us and help us get through the initial shock. Matt was that for me! As time went on, Matt continued to amaze me. He walked by 18 months, I watched videos of him communicating and interacting and thought WOW, we can do that too. But Matt was taken from us by a scary thing called Autism. This boy that many came to love and admire through our family site saw this particular family struggle with a new diagnosis. So on the 4th day of DS Awareness Month, lets remember all the other things families with DS deal with. Autism, Cancer, seizure disorders, heart issues, breathing issues, intestinal and so on.
God bless our children!
Matthew Isaac Coppins
God bless our children!
Matthew Isaac Coppins
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5 comments:
Thanks Steph. My Matt was amazing. And I'm so proud that he was such an inspiration to many people. Autism was a horrible, horrible blow and Matt is unrecognisable, apart from his face, from the little boy we used to have.
Nevertheless, he is still amazing.
He is so stinkin cute. I was just thinking this same thing this morning, that I just wish that people realized all the extra things we have to deal with. I guess the thought came into my head because I was just wishing Payton would get on her belly and go down the stairs. I know that in no way compares to some of the other things some of our kids go through, but it is even these little things. Wow, that was a random tangent! ROFL
Thank You for sharing this story...
I thought about sharing Matt's video as well, so I am glad you did it! Matt is such a shinning star.
I just wanted to tell you that, I look at your blog almost everyday. All of your stories have helped me tremendously. I believe that by reading your blogs and seeing all of your pictures, which are just adorable have made me accept Ds so much easier. So don't ever think your not an inspiration to anyone because you most definately are to me. Thanks a MILLION!! Kristi Blackmon